There are many excellent websites available for you to browse. Below are a few that we recommend:
Online Networking and Support Groups
ALS Awareness, Community, Support
- Hiller Amyotrophic Lateral Sclerosis Center - world-class physician-scientists work closely with clinical and scientific teams to develop innovative treatments and resources for patients with ALS.
- March of Faces - a grassroots non-profit organization founded by People with ALS and their loved ones:
- Ride for Life - "Our mission is to public awareness of amyotrophic lateral sclerosis (ALS), help research in finding a cure, support ALS patients and their families, and provide the ALS community with the latest ALS related news and information."
- Steve Weekes ALS Website - a comprehensive list of weblinks:
Dexterity and Mobility Aids
- Advantage Mobility Outfitters in Wayne provide sales and service of new and used vehicles with modifications, such as wheelchair and scooter lifts, hand controls, raised roofs and doors, and more:
- Assistive Technology (AT) XChange - People in Michigan who want to buy or sell items that
are used by people with disabilities. Speech devices, Daily Living Aids, Vehicle Modification and Transportation:
- EnableMart and Active and Able: Oversized keyboards and larger trackballs can aid computer use and communication for those who are having difficulty with fine motor skills:
- National Institute of Neurological Disorders and Stroke - the mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
- The Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS) - translating research advances rapidly into clinical trials for patients with ALS.
- The Robert Packard Center for ALS Research at Johns Hopkins - The Packard Center for ALS Research at Johns Hopkins enables the world's best ALS scientists to collaborate and access funding so that they may continue work to rapidly develop new treatments and find a cure for ALS, also known as Lou Gehrig's disease.
- Find numerous links to federal and state health programs:
- This site helps parents explain illnesses and injuries to their young ones:
- WEB MD is filled with more topics than you can squeeze into a season of "ER":
- Read up on changes and options available to Medicare recipients: